Friday, February 7, 2020

Daily Life

Captain was born with an imperforate anus.  He was lucky that it wasn't very severe and, with surgery at around 6 months, he had all working parts.  However, he is easily constipated and any change in diet really affects his body.  As a baby, he didn't have banana, applesauce, and had restricted dairy which are all foods babies eat first.  Keeping weight on him was always a challenge.  Starting last year, we started giving him fiber vitamins and probiotics as well as a weekly stool softener - except you don't want to over-correct either.  It's a delicate balance.

As a slow potty trainer, it was difficult to see how his condition would affect him long-term.  We know that the constipation is a daily, constant issue, but the bowel management/control is relatively new.  He's been trying, but we don't know what else to do.  There's either an accident or a little poop on his underpants at least 5 out of 7 days of the week.  The school seems to be impatient with it which I completely understand, but he also can't help it.  We see the doctor to see what else we can do this week.  

I've done some research online, but there are so many with such severe conditions and challenges, but I'm hopeful we can control this by diet and possibly medicine.  The next stages are much more physically taxing (daily enemas or X-rays or suppositories).  He already receives frequent suppositories which he hates.  As a picky eater, it makes diet tricky, but I think we would be able to adapt to any conditions we need to add.  So, here's hoping we get to the bottom of things.  See what I did there?  

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What We've Watched - 2020

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